One in every 31 children in the United States receives an autism diagnosis today, yet many families still wonder: What is the difference between aspergers and autism spectrum disorder? This question reflects one of the most significant changes in how we understand autism-related conditions in recent decades.
The simple answer is that there’s no longer a difference. Since 2013, Asperger’s syndrome is no longer a separate diagnosis. Both conditions now fall under autism spectrum disorder (ASD). But understanding why this change happened and what it means for autistic children, adults, and families requires looking at the bigger picture of how autism diagnosis has evolved.
The Historical Journey: From Separate Conditions to One Spectrum
For nearly 20 years, doctors treated Asperger’s syndrome and autism as different mental disorders. The Diagnostic and Statistical Manual of Mental Disorders (DSM-IV) listed them as separate diagnoses under “pervasive developmental disorders,” creating distinct pathways for diagnosis and treatment.
Hans Asperger’s Original Research
The story begins with Austrian physician Hans Asperger, who in 1944 described a group of children with unique characteristics. These young people showed significant social difficulties but maintained typical language development and average intelligence. Asperger observed that these children often had intense interests in specific topics and struggled with nonverbal communication, including eye contact and understanding facial expressions.
Asperger’s work remained relatively unknown to the English-speaking world for decades. It wasn’t until British psychiatrist Lorna Wing translated and interpreted his research in 1981 that the medical community began to understand these observations as describing a distinct condition.
What Made Asperger’s “Different”
When Asperger’s syndrome became an official diagnosis in the DSM-IV, it was characterized by specific criteria that distinguished it from autism:
Language and Cognitive Development:
- Normal language development milestones
- No significant delays in brain development
- Average or above-average intelligence
- Age-appropriate language skills
Social and Behavioral Characteristics:
- Difficulties with social interactions but less severe symptoms than traditional autism
- Challenges with nonverbal communication
- Problems reading social cues and understanding hand gestures
- Strong interest in specific topics or activities
- Preference for routines and predictability
Daily Life Impact:
- Often able to function in mainstream educational settings
- Could develop relationships, though with difficulty
- Frequently diagnosed later in childhood when social demands increased
- Many learned to “mask” or hide their difficulties
Traditional Autism Characteristics
Meanwhile, those who received an autism diagnosis typically showed:
- Delayed or absent language development
- More obvious social communication challenges
- Repetitive behaviors and movements
- Significant need for routine and predictability
- Varying levels of intellectual ability
- Earlier recognition of symptoms, often by age 2-3
This created what many professionals and families called “high functioning” versus other forms of autism, though these terms are now considered outdated and potentially harmful.
The Revolutionary Change: DSM-5 and the Autism Spectrum
In 2013, everything changed when the American Psychiatric Association released the fifth edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5). This update eliminated Asperger’s as a standalone diagnosis and created the unified autism spectrum disorder category.
Why the Change Happened
Researchers found that Asperger’s and autism shared core traits such as social communication challenges, repetitive behaviors, and sensory sensitivities, suggesting they were more alike than different. The main distinction lay in the severity of symptoms, not the type.
These overlapping features led to inconsistent diagnoses and confusion about support options. Combining them under the broader autism spectrum allowed for more consistent care and better research into effective interventions.
The New Spectrum Approach
The DSM-5 created autism spectrum disorder with three support levels based on the amount of assistance needed:
Level 1: “Requiring Support”
- Similar to what was previously called Asperger’s
- Needs help with social communication
- May struggle with organization and planning
- Can live independently with some support
Level 2: “Requiring Substantial Support”
- More obvious social communication challenges
- Significant difficulty adapting to changes
- Needs noticeable support to function effectively
Level 3: “Requiring Very Substantial Support”
- Severe challenges with social communication
- Extreme difficulty with change
- Needs extensive daily support
This approach focuses on individual support needs rather than categorical labels, recognizing that someone’s needs can vary across different areas and change over time.
What This Means for People Previously Diagnosed
If you or someone you know previously received an Asperger’s diagnosis before 2013, that diagnosis is still valid. Many people continue to identify with the term as part of their personal identity, which is completely understandable.
There’s no need for re-evaluation unless desired. Services and insurance coverage typically continue under the updated autism spectrum diagnosis. Today, someone who would have previously received an Asperger’s diagnosis would likely be diagnosed with ASD Level 1.
Understanding Today’s Autism Spectrum Disorder
Current autism diagnosis focuses on two main areas that must be present from early childhood:
1. Social Communication and Interaction Challenges
This includes persistent difficulties across multiple contexts:
- Social-Emotional Reciprocity: Autistic individuals may struggle with back-and-forth conversation, sharing emotions or interests, and starting or responding to social interactions.
- Nonverbal Communication: They may have trouble with eye contact, facial expressions, gestures, and understanding body language or personal space.
- Developing and Maintaining Relationships: They may struggle to make age-appropriate friendships, adapt to different social settings, and understand relationship boundaries.
2. Restricted and Repetitive Behaviors, Interests, or Activities
At least two of the following must be present:
- Repetitive Movements or Speech: May engage in repetitive behaviors such as hand flapping, rocking, spinning, using objects repeatedly, or echoing words and phrases.
- Routine Adherence: Often have a strong need for sameness, struggle with transitions, and follow ritualized patterns of behavior.
- Intense Special Interests: Have intense, highly focused interests and find it difficult to shift attention away from preferred activities.
- Sensory Processing Differences: Overly sensitive or unresponsive to sensory input, react unusually to textures, sounds, or lights, and show excessive smelling, touching, or visual focus on objects.
The Modern Diagnostic Process
Getting an autism spectrum disorder diagnosis today involves a comprehensive evaluation by qualified professionals.
Who Can Provide an ASD Diagnosis
Several types of medical professionals can diagnose autism:
- Developmental pediatricians
- Child psychologists and psychiatrists
- Neuropsychologists
- Licensed clinical social workers with autism expertise
- Other medical professionals with specialized training
The Assessment Process
A thorough autism evaluation typically includes:
- Developmental History Review: The evaluation includes reviewing early childhood milestones, family history of autism, behavioral concerns, and overall medical history.
- Behavioral Observations: It involves direct interaction to observe social communication, assess repetitive behaviors and interests, and evaluate sensory responses.
- Standardized Assessments: Professionals may use tools like the Autism Diagnostic Observation Schedule (ADOS), Autism Diagnostic Interview–Revised (ADI-R), and various cognitive and adaptive behavior assessments during the diagnostic process.
- Family and School Input: The evaluation also includes questionnaires about behavior in different settings, teacher observations, academic performance, and daily living skills assessments.
The entire process can take several hours across multiple appointments and may involve a team of professionals working together.
Support and Intervention Options
The good news is that support options have expanded significantly since the diagnostic changes. The focus isn’t on “curing” autism but helping autistic people thrive and reach their potential.
Evidence-Based Behavioral Interventions
- Applied Behavior Analysis (ABA): Modern ABA focuses on positive reinforcement and natural learning opportunities, moving away from outdated compliance-based approaches.
- Social Skills Training: Structured programs that teach specific social communication skills through practice and feedback.
- Cognitive Behavioral Therapy: Particularly helpful for managing anxiety, depression, and developing coping strategies.
Communication and Language Support
- Speech and Language Therapy: Addresses both verbal and nonverbal communication challenges, including conversation skills and understanding social language.
- Alternative Communication: For those who struggle with spoken language, options include picture exchange systems, sign language, or speech-generating devices.
Educational Support and Accommodations
Schools support autistic students through Individualized Education Programs (IEPs), which set personalized goals and legally required accommodations, and 504 Plans, which offer classroom support without specialized instruction.
Helpful classroom strategies include visual schedules, sensory accommodations, clear routines, and modified assignments tailored to each student’s needs.
Daily Life and Independence Skills
- Occupational Therapy: Addresses sensory processing issues, fine motor skills, and daily living activities like self-care and organization.
- Life Skills Training: Practical instruction in areas like cooking, budgeting, transportation, and household management.
- Workplace Support: Job coaching, accommodation planning, and social skills training for employment settings.
Living Successfully with Autism Today
Many autistic individuals lead independent, fulfilling lives with the right support, self-awareness, and understanding. Learning about their own autism profile empowers them to recognize strengths, communicate needs, and seek helpful accommodations.
Supportive environments, clear routines, and respect for different communication styles make a big difference. Meaningful relationships, whether through family, friends, interest groups, or support communities, also play a key role in fostering confidence and connection.
Conclusion
Understanding the shift from Asperger’s disorder to autism spectrum disorder (ASD) helps families, educators, and individuals better navigate the diagnosis and support process. While the label may have changed, the goal remains the same: ensuring each person receives the understanding, resources, and care they need to thrive. Today’s spectrum-based approach reflects a broader, more accurate view of autism, allowing for more personalized interventions based on individual strengths and support needs.
At Affinity ABC, we’re here to guide you every step of the way. Whether your child was previously diagnosed with Asperger’s disorder or you’re seeking a current evaluation, our compassionate team offers expert, individualized ABA therapy across New Mexico. Reach out today to learn how we can support your family’s journey with personalized care, evidence-based strategies, and a deep commitment to helping every child succeed.
FAQs
What is Asperger’s called now?
Asperger’s syndrome is now called Autism Spectrum Disorder (ASD), typically diagnosed as ASD Level 1, “requiring support.” The diagnosis changed in 2013 when the DSM-5 eliminated Asperger’s as a distinct diagnosis and combined all autism conditions under one umbrella.
What are the symptoms of Asperger’s in children?
Children show difficulty with social interactions, intense interests in specific topics, and a preference for routines, but with normal language development and average intelligence. They may struggle with eye contact and understanding social cues.
How to understand someone with Asperger’s?
Be direct and clear in communication, respect their need for routine, and understand that social interactions may feel overwhelming. Show patience with their intense interests and recognize they process information differently.
Can you live normally with Asperger’s?
Yes, many people with ASD Level 1 live independently, have successful careers, and form relationships. With appropriate support and understanding, they can achieve their goals and lead fulfilling lives.